Morning update

Jensen has had issues keeping his blood pressure up this morning. They are trying to keep it up without having to give him so many blood products, but he responds so well to blood (it's turned into a quick fix for his BP).He also had a fever this morning and that also dropped his pressures. Tylenol has helped the fever. Dr. Fuller is going to wash out his chest and close it this afternoon. She will also put in an atrial pacing wire because his rhythms have been slow/irregular. He is on fentanyl but that is already being weaned down. He isn't on any heart meds (his ventricular function is always stellar?! That amazes me.) He could be extubated tomorrow, but it depends on how things go today.

He looks pretty good considering what he has been through. We were terrified he would end up on ECMO again but that was never a concern of Dr. Fuller's. He has other issues like they weren't able to place a working arterial line so they had to attempt one in all I his extremities. They finally got one to work but he will now have a lot of scarring from the areas where they cut down to the vessel. He also has two chest tubes, so one new scar there too.

We are exhausted and are having a hard time speaking in full sentences! All in all we are happy with where he is. The issues he has are things that are relatively simple fixes, it's just about finding the right balance. That seems to be the trend with hypoplasts.

Once again, we are overwhelmed at everyone's kindness. We have received so many messages and prayers! I may not have time to reply to all of them, but we do read them. Thank you all do much and please continue to pray for our precious boy.