Thanks to social media, we have not used this blog in so long. I find Facebook & Instagram much easier to use and post pictures, so there is much more Jensen content there (check out the Willis Family Heart Facebook group). I will be archiving this blog but wanted to post a Jensen update first.
He is now 9 years old. In 2020, we moved from our home in North Carolina to Austin, Texas. This means we also moved his care to Texas Children's. They have a phenomenal reputation, but it was so difficult to leave our family at CHOP and the doctors we loved dearly in North Carolina.
Jensen is in 3rd grade and is still a lover of all animals, especially our 1 year old bernedoodle, Broccoli. He is embracing life in Texas and is often seen wearing his cowboy hat and singing along to country music (Tyler Childers and Cody Johnson are his favorites). He has an IEP at school to help him with reading, math and social skills. We are still seeing psychiatry regularly and adjusting his medications as he ages. Emotional regulation and changes in routine are still a struggle. However, he has come such a long way in this area and we are so proud of how in-tune he is with his emotions.
He recently had a cardiac MRI and we received a great report. His cardiac function looks great and he has a leaky valve that has been stable for years. He still has several stents and they all have excellent blood flow through them! All good things!
We are so thankful for his health and happiness, especially with all the changes in the past 2 years (a pandemic & a cross-country move?! It was nuts!).
As always, we appreciate your prayers and well-wishes for Jensen. We cherish every milestone, every birthday, and every fun memory we get to make with our miracle boy.
