Saturday, December 15, 2012

All our bags are pack and we're ready to go...

I can't believe we are leaving tomorrow to go back to Philly! The past few weeks have been insanely busy with tons of phone calls, appointments, paperwork, errands, and squeezing in as much Christmas fun as possible before we leave!
Picking out his first tree!

We fly out of Raleigh tomorrow morning at 7 am (ewww). My wonderful parents will be there to pick us up from the airport along with our luggage, stroller, carseat, and winter coats. That cuts down on so much extra stuff we have to carry to (and through) the airport. We will have all of Sunday to relax, eat at our favorite brunch place, and prepare for the massive amount of appointments Jensen has. 

Monday we will be seeing Dr. Licht for an EEG to check for any seizure activity. We will also discuss the possibility of him coming off of his seizure meds. There are pros and cons to this that we have already discussed with our local neurologist, but I'm looking to Dr. Licht for his expert opinion. After that appointment Jensen will be seen at the NeuroCardiac Care Program. He will be seen by 7 different specialities that will evaluate his development and overall health. I am so thankful we were able to get in (we have Dr. Licht to thank for that!) because this will give us a comprehensive overview of how he is doing. 
Thank you Carli Alisabeth Photography for taking our first family pictures =)

Tuesday we have pre-admission testing. This will include a battery of other tests including a blood draw. Yuck. I am absolutely dreading the blood draw, almost as much as the cath itself! Jensen will be examined by a nurse practitioner and this is when we will find out what time we need to be at the CPRU for the cath. 

Wednesday will most likely be miserable. Jensen won't be able to eat and if he isn't the first patient in line, we will have a long wait with a hungry baby. I'm expecting this cath to take longer than the last one just because he will need intervention this time (which means the stents he has need to be made larger). This also means we will have an overnight stay in the hospital. As long as Jensen is tolerating his recovery well we will be able to go home a day or two after that. Of course, this is all dependent on Jensen and due to his rambunctious nature, I'm guessing he will have a few surprises for the cath team! 

Jeremy and I both get nervous before any procedure but we have to remember, Jensen is a superhero! He's got this!

Please pray that my child behaves and we are in and out of this procedure! We are hoping that we will get to be home for Jensen's first Christmas. We will update as much as we can while we are there! Thank you all for your prayers and positive thoughts for our little man!

1 comment:

  1. Wishing you well with Jensen's cath and all the follow up appts. that are necessary at this time. Good luck with them all. I know Olivia will be back up there for her 3rd surgery a little earlier than expected maybe around April depending on her sats. Praying for good results.
    Olivia's Nana, Sheila