NeuroCardiac Clinic Day

Shew what a day! Jensen is absolutely worn out and grouchy! We started our day by having an EEG done. We were not sure how we were going to keep a squirmy 10 month old still for 20 minutes, but we were pleasantly surprised. He did awesome! He watched the Disney channel (which we DO NOT allow in our house) and was totally enthralled. He watched that for the first 10 minutes then looked around and laughed at us for the last 10 minutes. He was such a good boy!

After lunch we saw Dr. Licht to talk about the results. There was some asymmetry in his brain activity, which is from the subdural bleeds. (This means that there is some space between his brain and skull on one side) Dr. Licht said that if he hadn't seen him in a physical exam, he would be concerned. However, he was very impressed by Jensen and his progress. He couldn't see any asymmetry in Jensen's movements or extremities. He didn't see any need for further imaging or to keep him on Keppra! I am so happy to be taking him off of one more medicine :)

Next we saw cardio, speech therapy, occupational therapy and physical therapy. He was great for cardio and speech. Everything seems to be on track with his speech progress. She was the same therapist that helped us feed him when he had the paralyzed vocal cord. She was completely blown away that he has been nursing since 5 months old and eating solids since 7 months old! I love hearing how great Jensen is doing :)

By the time we saw OT/PT Jensen was absolutely exhausted. He was too tired to play, sit up, roll over, or even hold his head up. He still did some things for them and showed them a few of his "tricks", but they really couldn't see all of his progress. They basically had to go off of what we told them, but they were happy that he is in weekly therapy at home and is making measurable progress.

He is now knocked out at the hotel, snoozing away! Tomorrow is going to be another long day, but we don't have to be at the hospital until 2, thank goodness! Please keep praying for Jensen to do well at all of his appointments. Also, pray for us to keep our sanity! This week is going to be very trying and stressful!