I haven't heard the "official" word on what Jensen's team at CHOP wants to do yet, but we did hear a timeline. Dr. Robinson has been talking to Dr. Rychik (at CHOP) and they think the cardiac cath will be scheduled in 3-4 weeks. 3-4 weeks! Today began a whole new wave of anxiety!
It seems like there is so much to do in so little time! We have to get insurance referrals going immediately, Jeremy will need orders to travel, then plane tickets, lodging, arrangements for our pups, house, cars, and probably many other things I've not even thought of yet.
Although we are incredibly worried about the next few weeks, we can't wait to put the Glenn behind us. After the second surgery, its like a whole new lifestyle. We won't have to keep him isolated from the rest of the world because he will be much more stable. (Don't worry, I'll still be buying Purell in bulk.) Our cardio appointments won't be so often. We will be able to finally relax and enjoy our son without constantly monitoring his every move. I am so looking forward to this part! Bur first there's still a few more hurdles ahead of us. Please keep us in your prayers as we (frantically) prepare for our next trip to Philadelphia.
Subscribe to:
Post Comments (Atom)
Glad you are getting ready for the Glenn. Hey Brett and Melanie were told it was the easiest surgery but as in everything Heart moms and Warriors have esperienced there are always things that pop up. But now it is 2 months post op and Olivia is doing great. Hardly check stats, only 2 doses of of lasix a day. She is still drinking her nonfat formaula infaport(she will keep her girlish figure)lol. Took her a few bottles to start drinking it but she takes it now always. They will be starting to add regular formula to the infaport soon. She is thriving. I remember when we were where you are right now just keep the faith. We are praying for you down here in New Orleans. It is also nice to visit people and she is just a glorious ray of sunshine with her sweet smile. Many prayers are coming ur way because the Power Of Prayer will get you through. Give Jensen a hug and a kiss from his fellow HLHS family.
ReplyDelete