Meeting our surgeon

Today was one of the most important appointments we have had so far. We finally got to meet with Jensen's cardiothoracic surgeon (CT surgeon). Her name is Dr. Stephanie Fuller and we totally LOVE her! She was down to earth, funny, and very professional. We asked her a ton of questions and she was very patient with us. She described the day of surgery in detail so we would know what to expect. We learned everything from the time Jensen is taken from the CICU (cardiac ICU) until we can see him after surgery. I feel extremely comfortable with her as our surgeon. I've told many people that I feel like every time we go to CHOP I feel like we have won the lottery! Every person we interact with is so helpful and so understanding, we are so blessed to have these people working with us!

Along the way, I'm going to try and post more detailed info about HLHS and the surgeries themselves, because it is a difficult diagnosis to understand. I hope everyone that reads this will take a few minutes to learn more about HLHS (or any other congenital heart defect) and spread the word. February is Heart Month and 1 in 120 babies born have a CHD. There is very little knowledge and very little research on CHDs right now. So instead of just Going Red for American Heart Month, also think about the little ones that are affected by heart defects.

The Normal Heart

The HLHS Heart

The Norwood (or Stage 1 Reconstruction)